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Reggie and the Neville Brothers
How can I begin to tell you how much fun I had yesterday at the International Festival. The day stated out very well with meeting people who have seen me before. There where happy to take photos with...
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My new Friend, Ed Port, needs your help.
From: Ed Port <gbg@ameritech.net> Date: December 27, 2008 2:56:15 AM CST To: reggie@reggiebibbs.com Subject: Hello Reggie from Ed Port Reply-To: gbg@ameritech.net Thank you for the e-mail MIke...
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NF Lobbyist in Washington needs our help!
Here is a link to past your draft letter DRAFT Senate Support Letter Dear friends, I received this support letter template via email from our neurofibromatosis lobbyist in Washington, D.C. She asks...
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Neuropathy Solutions is currently seeking 60 patients with Neurofibromatosis...
Received this yesterday: Hi Lou, My name is Patty Hall and I’m a research director recruiting people with NF1 for a double blind, placebo based study investigating certain nutrients in the treatment...
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12th Carolyn Farb Lecture in Neurofibromatosis – Monday, June 14 – MD...
12th Carolyn Farb Lecture in Neurofibromatosis Whats new in Neurofibromatosis? Of mice and men: Mouse models of NF-1 and human clinical trials Kathryn North M.D., F.R.A.C.P. Douglas Burrows Professor...
View ArticleAn excerpt from NeuroTalk Support for people with neurological disorders and...
“Hi, My name is Camrin, at 15 years of age I was diagnosed with neurofibromatosis type 1. Neurofibromatosis is small tumors on your head or other areas of the body. Some of the symptoms might be brown...
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Kay has neurofibromatosis (Video)
Meet Kay from the U.K. (full interview) WellChild meets a young girl called Kay, who has a condition called neurofibromatosis otherwise known as NF1. Children’s health videos from WellChild....
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Rodeo Night With Martina McBride
Tonight was another great night at the Houston Livestock Show and Rodeo! I started out with the live stock show and all of the other fun things. Oh, my God! Did I enjoy the FOOD. Everything was to die...
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Clay Walker at the Houston Livestock Show and Rodeo, 3/14/08
Wow! Tonight I was invited to the Rodeo once again. It was a more then Terrific night. The music was the best I’ve heard so far. Clay Walker sang all of my favorite songs and encouraged everyone to...
View ArticleJust Ask World Tour to Make Stop at CTF NF Forum in Scottsdale, AR!
Reggie Bibbs and I are excited to kick-off the Just Ask World Tour at the CTF NF Forum in Scottsdale, April 17! Come join us we finally get to meet all the great CTF people in Arizona! April 17-19,...
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